Category Archives: Progressive Supranuclear Palsy

Karma

Six months ago, Jack and I sat in a VA doctor’s office and listened as two neurologists explained the diagnoses of Progressive Supranuclear Palsy. We argued with the experts a bit, tried to find another explanation for his many symptoms. … Continue reading

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Juju Beads

My winding path to enlightenment, or more truthfully toward survival, is strewn with a discarded string of juju beads representing various religions and philosophies. I have at one time or another embraced Protestantism, Catholicism, Christian Fundamentalism, Humanism, and Skepticism. I’ve … Continue reading

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Forgetting

Forgetting our past is terrifying. Our experiences, our memories are who we are, how we identify ourselves. Part of the progressive supranuclear palsy from which Jack suffers is dementia. But, not the loss of memory associated with Alzheimer’s disease. No, … Continue reading

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Death

D is for death. Not Jack’s death. Ultimately, that will be his with which to deal. I want to talk today about my own death, and the 70% chance that I will die before Jack. That’s the statistic. 70% of … Continue reading

Posted in aging, calcium, caregiver, grief, health, heartburn, Parkinson Disease, Progressive Supranuclear Palsy, pts, Uncategorized, veterans, writer | 1 Comment

Bitter

“Woman’s virtue is man’s greatest invention.” Germaine Greer Four years ago – when Jack began falling, when I first noticed the tremor in his left hand, when his vision began to deteriorate faster than the VA could order him new … Continue reading

Posted in aging, caregiver, grief, health, marriage, Pamela Foster, Progressive Supranuclear Palsy, Uncategorized | 2 Comments

Advice

Since Jack was diagnosed with Progressive Supranuclear Palsy, an un-treatable, progressive, and ultimately, fatal disease, everyone has advice on how to cure him. Well, everyone but every single medical personnel. The advice of the neurologist was to get his affairs … Continue reading

Posted in aging, Pamela Foster, Progressive Supranuclear Palsy, Uncategorized | Tagged , , | 4 Comments

Catch 22

A lot of people think the Veteran’s Administration is an unwieldy bureaucracy set up to help veterans. In my experience this is true of most of the individuals who work at the VA. But the organization itself is set up … Continue reading

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